Thursday, April 24, 2008

Taking 2 more extra steps...

Mylee had a wonderful evening last night....she helped daddy fix dinner in the was really cute! She must of understood a conversation Dave and I was having regarding her walking...Dave positioned her to walk to him and sure enough she took 2 more the video below!

I got an email from a friend of ours here locally in Phoenix. She has some friends that own a race car track here in the valley and she would like to have a fundraiser in honor of Mylee and Chiari Awareness...It is in the early stages, but I believe this will take place sometime the end of June. I will keep everyone updated on the status of the event. We are looking for donations in Mylee's name and hope we get some pretty big sponsors... This is going to be great not only to raise money for Chiari but really to get the awareness out into the community.

We have an appointment today with Mylee's neurosurgeon. We will get the results back from her full spine MRI, please pray she does not have Tethered Cord or any Syrinx (fluid cysts in her spine)....My daughter is so amazing and beautiful! I am so proud of her!!


1 comment:

Kelli said...

Oh what a sweetie, she is such a doll. What an exciting moment, thanks for posting it.

Dave, Kelli & Ben