Wednesday, January 1, 2014

In her memory...

Our day today, the first day of the year 2014 is now coming to a close.  Dave has just finished his run for the day and he is feeling great!  We are less than 3 weeks now until Arizona's PF Chang Rock N Roll Marathon.  We are excited for TGen's Rare Childhood Disorders to be an official charity this year!  Team Mylee's Marathoners continues to train hard and fundraise with so much enthusiasm!!  We are so proud and excited for this fun event!!

Please welcome our new friend, Phil Maderia who has organized Genzyme Marathon Team to qualify and run in the Boston Marathon is coming to Phoenix to run in the PF Chang Rock N Roll Marathon!  He has asked to run in memory of Mylee in the 2014 Boston Marathon!!  We are excited to meet this amazing person who has created this awesome team of dedicated athletes who are making a major positive impact on the lives of people with serious diseases and illnesses.  This amazing team has teamed up with the National Organization For Rare Disorders to run for rare diseases. 

We are so grateful for those who continue to keep the memory of Mylee alive.  It is so important to us to continue to bring awareness to our communities about rare childhood disorders, so that one day, better treatments come available and those with diseases that have no cure can be found!  

For more information on how you can help support these amazing runners, please visit Mylee's Marathoners  or Running for Rare Diseases.

                              "Never Give Up..."