Sunday, November 8, 2009

2nd Annual Miracle Race was a success!!

The 2nd Annual Miracle Race for Mylee Grace and her Chiari & Syringomyelia friends was a success! We are grateful for your support this year. Thank you very much for providing Mylee and her attendees the support necessary to have a successful fundraiser. With your help we were able to bring awareness to our community and increased funding for research. We continue our HOPE that one day the cure for Chiari, Syringomyelia and it other related neurological disorders will be found.

I would like to share with you some high points of our event:

On Sunday, September 20th, 2009 the Arizona Chiari/Syringo Support Group, friends and family joined Mylee Grace at Kiwanis Park in Tempe, Arizona. The day brought awareness to our community, joy to our friends and family and lots of sunshine!!

Our event kicked off bright and early at 6am with the help of the JB Martial Arts program who worked hard to set up the event, help vendors and cheer on participants along the walk route.

Ronald McDonald jazzed up the crowd with a few stretches while DJ KAZ provided music to get the crowd energized. The 2-mile charity walk kicked off at 7:30 with Ronald McDonald leading the way. All participants crossed the finish line and received goody bags filled with items donated by multiple sponsors.

Our raffle at the event was a big hit!! The first raffle item was chosen by another fun guest appearance. NBA Phoenix Suns Gorilla ran around with kids at the event and even caused some mischief with some of the vendors on site. We raffled off fun prizes are so grateful to those who donated. We are also thankful to those who participated with vendor booths, which included; smoothies & popcorn, jewelry & children’s clothing, massage booths, service dogs, and information booths from various companies.

We closed the event with the announcement to Mike Scarpone, CEO of ASAP and with great honor a presentation check with the amount of over $17,000 for research! It was an awesome experience and we are looking forward to getting started on the event in 2010!
Again, I would like to extend my appreciation of how much it means to my family, our Arizona Chiari & Syringomyelia Support group for your support, and the American Syringomyelia & Chiari Alliance Project.

We look forward to the event in 2010, Save the date - October 2nd, 2010 for our 3rd Annual event! For more details visit: