Dave and I have learned so much in life in the past year and half. We treasure each moment as if it is our last and keep each little memory dear to our hearts. If I were to give any piece of advise to anyone who asked me I would have a simple answer and that would be to live life to its fullest and to keep those complaints that we all seem to vent about to a minimum. Remember someone out there is having a worse day than you are....
A mom of a friend of Mylee's posted this on her daughters caringbridge site today and I thought it would be fitting to also post here. Yesterday was day we all honored our Mother's. This is an inspirational essay written by this author who explains how God chooses moms for kids with special needs.
The Special Mother
by Erma Bombeck
Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
"Forrest, Marjorie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
'The angel is curious. "Why this one God? She's so happy."
''Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
''But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
''I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has her own world. She has to make her live in her world andthat's not going to be easy.
''But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied.She will never take for granted a 'spoken word' . She will consider a "step" ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
''I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone.I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side."
"And what about her Patron saint?" asks the angel, his pen poised in mid-air.
God smiles, "mirror will suffice."
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We had a terrific weekend with Mylee. It started out kind of rough, but we ended it well with relaxation on Mother's day! Happy Mother's Day to all you mommy's out there!!
Friday, we visited with our friends from Idaho and sweet little Olivia! She is such a cute baby doll! Her and Mylee had a lot of fun on Friday night playing together...we hope we will get to see them again soon! Happy belated 1st Birthday Olivia!! We made Olivia an honorary princess for the evening!
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We had a little bit of a scare Saturday morning, Mylee woke up early and when Dave went in to check on her her feeding tube had fallen out! Off we went to Children's Hospital to get her feeding tube placed back inot her tummy. We were out of the hopsital quickly and went ahead with our planned BBQ in the afternoon. Mylee had some of her favorite buddies over to play.
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