Mylee failed her Modified Barrioum Swallow test today. She in fact aspirated the solid portion of the test immediately into her trachea (not a good thing in order to breath)! This is very frustrating for Dave and I. We only want was is the very best for Mylee and so far her entire life has been anything but that! We will continue to spoil her with endless love and keep her as pain free as possible. Thank you to all of our family and friends who have been so supportive to us throughout this journey. It looks like we will need those continued prayers. For now, we will wait to hear from Children's Hospital who will contact us to schedule Mylee for Vital Stimulation therapy.
Our journey continues....
xoxoxox
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