Daddy played with Mylee and took her to the grocery stores, we were in desperate need for groceries! We rented a several pay per view movies on Friday night and on Saturday! It was a lot of fun just hanging out and watching the television! On Sunday, Mylee and daddy went swimming. They didn't stay out there for too long because it was a scorcher and Mylee likes to put her face in the water in which she cannot. She has already somehow aspirated in the past few weeks which had possibly caused another pneumonia. We are watching her carefully and have started our regiment of breathing treatments several times a day.
Our work week ahead is somewhat steady. Today we have a day off and we took Mylee to preschool for a little over and hour. I picked her up and her nose was oozing with yuckies. I will suction her later. I gave her a bolus feed (breakfast) and she is now napping. This evening we are heading out to Max's Sports grill to sale early tickets for Mylee's fundraiser. The radio broadcast will be live again, so for those who are interested I am sure they will have a segment regarding Mylee's event! Remember the races will start a 7pm on June 21st. The information regarding the event is to the right of her blog, check it out if you wish! Please remember I am putting together "Faces of Chiari" for those of you who have not already sent me your pictures, please email me at: firstname.lastname@example.org. I am hoping to finish this project by the end of this coming weekend.
The rest of the week is filled with therapy sessions and hopefully a little relaxation. Mylee will go back to preschool tomorrow and Thursday, pending how she is feeling and if she has no fever. Please keep your fingers crossed for us that she maintains her breathing as it is today and does not get worse. Otherwise, we head back to the ER (we don't go to the Pediatrician anymore because more than likely he would send us to the ER anyway). We have come to trust our judgement and 95% of the time her lungs are filled.
Have a fantastic week and we will post again soon!
Lots of love,