Sunday, March 28, 2010

A Champion!

It is a beautiful Sunday morning, I sit here as my youngest naps and as I watch my oldest dance in her 'way' of course... she loves to play her demo music on the keyboard and dance away as if her feet and legs are weightless. I love to watch her flap her hands and arms to her own version of the rhythm of each song. And every so often a breeze will come rushing through our open windows and cause Mylee to shutter with excitement for the cool feeling on her face. Her expressions are priceless! I always wonder what her little thoughts are... like I said her expression tell it all... Despite the challenges she competes for each day - she will always be our champion!

We also fight each day for Mylee and continue our journey with her unknown metabolic diagnosis. It seems to be pointing towards a mitochondrial disease. We may never know for sure, but still encourage all of our friends and family to help us fight this battle! Help spread our words... learn about Mitochondrial disease... help us fight!

On Being a Champion

A Champion is a winner,
A hero...
Someone who never gives up
Even when the going gets rough.
A champion is a member of
A winning team...
Someone who overcomes challenges
Even when it requires creative solutions.
A champion is an optimist,
A hopeful spirit...
Someone who plays the game,
Even when the game is called life.
There can be a champion in each of us,
If we live as a winner,
If we live as a member of the team,
If we live with a hopeful spirit,
For Life.

By Mattie J.T. Stepanek

Mattie, lost his battle... but he never gave up! Mylee will NEVER GIVE UP... We will NEVER GIVE UP!!


1 comment:

Amber Greenawalt said...

Thank you for posting my video :)